Baby H was born with Down syndrome and imperforate anus. This gastrointestinal defect is more prevalent in children diagnosed with Down syndrome, and is a life-threatening situation that requires multiple surgeries, with the first needed immediately after birth.
Little H did have his first colostomy surgery right away, while he was still with his birth family. We suspect that his family did not receive the diagnosis of Down syndrome until some time later. He was about two months old when he was abandoned and taken to an orphanage. The orphanage asked us right away if we could provide the special nursing care he needed, so he came to stay in our infant care project.
Our initial evaluation revealed that his colostomy was prolapsed and did not look entirely normal, so we transferred him to Beijing for a consult with the specialists. Fortunately, he did not need hospitalization or ongoing treatment, so he returned to our baby home after a brief period of observation.
Little H will need additional surgeries once he gets bigger and stronger. His nannies are working hard to help him gain weight. He is an easy-going baby who smiles and giggles easily. When you speak to him, he talks right back, but we don’t fully understand what he is saying yet! 😊
We don’t know what the future holds for little H, but we are privileged to be his "family", offering nurturing care, advocating for all of his needs, and of course - loving him for the very special, unique person that he is.
No comments:
Post a Comment