Butterfly Boy

We'd like to share the story of P, who was abandoned 8 years ago in a province in eastern China.  Recognizing that he had a very rare and complex combination of medical issues, his orphanage asked if we could help.  

Little P was diagnosed with EB (epidermolysis bullosa, or “butterfly skin”) as well as a congenital heart defect.  P’s heart surgery was very challenging because of his skin issues, but we were able consult with experts abroad who provided guidance and recommendations, and everything went smoothly.

Because P’s orphanage is unable to provide the high level of special nursing care that he needs on an ongoing basis, they have allowed him to remain in our medical home for the past 8 years.  Unfortunately, it’s not possible for him to attend a regular school.  We have been working hard to provide him with a basic education and diverse opportunities to experience the world as other children do, despite the limitations of his medical issues.  

P loves to go on outings, even very ordinary ones like going to the store and helping with the shopping.  He is a very smart little boy who loves to ask questions and give advice.  

We are blessed to have groups of volunteers visit regularly; P is always delighted to welcome them in and direct the games and craft activities planned for the day.  

One of his favorite things to do is build very tall towers with Duplo’s, and he loves everything Paw Patrol!  

He’s often a bit shy at first, but once he gets to know you, he can be very silly and has a lot to say!  It’s not an exaggeration to say that P has left a mark on the heart of every person who has ever met him.

We are grateful to all who have made it possible for us to provide P with love, nurturing and life-saving medical treatment.  While we don’t know what the future holds for P, we are privileged to be a part of his story.  

Meet H!

 We'd like to introduce you to H!  H was abandoned as a tiny premature infant eleven years ago.  She weighed just 2 lbs. 9 oz (1.17 kg) when her orphanage asked us if we could accept her into our preemie unit.  

H required a high level of special care at first, but with careful monitoring, one-on-one kangaroo care, special attention to feeding, and lots of love she soon grew into a beautiful little girl.  

H now lives in one of our foster families in the northern province where she originally came from.

H is now finishing up third grade and very excited for her summer vacation.  She is very interested in living things, both plants and animals.  She loves to catch frogs and collect tadpoles in the springtime, and enjoys working in the garden.  

H has learned a lot about helping out at home and is becoming efficient at making beds, sweeping floors, doing dishes, and has even been learning how to make dumplings!  

She is very caring and gentle toward the other children.  We recently witnessed a tender moment when a group of children were visiting the sand dunes in Inner Mongolia.  One of the girls was coming down and had a moment of panic; she was afraid to move.  H ran over to her, took her by the hand, and offered encouragement, “It’s OK.  You can do it.  Don’t be afraid, we will go down together!”.  The foster parents and staff were incredibly touched by her compassion.

We truly wish that she might someday have a family of her own.  Until then, we are honored and privileged to be her family, providing her with nurturing caregivers, a stimulating environment, and abundant opportunities for growth and education.

Thank you to all who make our work possible.  You are doing amazing things for H and all of our Little Flowers. You are truly changing lives!

Launchpad🚀 - Meet C.E.

 We wanted to give you a chance to get to know the participants in our Launchpad program.  We interviewed each participant so that they could share their stories, their hopes and how this program is helping to shape their future.

C.E was born with spina bifida and came to the orphanage as an infant.  Another non-profit (similar to ours) arranged his surgeries and cared for him as a child, and he then later returned to the orphanage as a teen.  We only met him three years ago when we began our Launchpad project... he heard about it and was very interested in joining.  He felt the same way as YG, and wanted to explore the idea of a fulfilling life outside the orphanage.    He's now a young adult, navigating an ever changing China as a person who uses a wheelchair.

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Could you please introduce yourself?

My name is C.E., and I am 21 years old. 

How would you describe what you’re doing at the group home and the social work center now? / What does a typical day look like for you?

I come to the social work center during the day, where we have many arrangements. Recently we are training to do a lot of hands-on activities, for example, beading, tie-die, etc. 

I also teach the others here to sing every Monday and Wednesday. Whenever we have a party here, I am involved in planning and directing. 

I love English, and I study English every day. I go home in the evening. Sometimes I cook, and sometimes I tutor kids English; it helps me earn a little money.

 What do you enjoy most about being part of this program?

My favorite part is the movie time every Thursday afternoon. I got to finish all eight movies of Harry Potter!

 What kind of professional skills are you learning or improving right now?

English.

What has been the most valuable thing you’ve learned so far — about the work, living independently, or about yourself?

It’s the cooking. When I was little and lived in a different organization, we were divided into rooms according to our physical conditions. I used a wheelchair and I was the youngest, and so I had never given the chance to even touch anything in the kitchen until I was 20. So now I love cooking! 

I go to meet my “sisters” from the previous organization in their home almost every weekend and I cook! I cook for them and for me, and I just love it!

What motivates you to keep learning or working in this field?

My motivation is that I love learning English. I enjoy thinking and talking, and English is a suitable subject. I take pride in being able to understand English. It also broadens my mind and allows me to read a diverse range of books.

Where do you imagine yourself five years from now? What kind of person or professional would you like to become?

I hope I am able to be completely independent, and feel confident about myself. I hope I can provide for myself. When I first joined the Launchpad, I had a lot of fear, for example, fear of taking the bus by myself. Now I take the bus and the subway all over the city; I have overcome a lot. I still have some things that causes me anxiety, and I hope I will be able to cope. I hope I can be more relaxed.

What message would you like to give to younger youth who are going to start their training?

Life has no limits.

 

Little G

This month we'd like to share about a boy in our family model of care project.  Little G had been left in a baby safehouse as a newborn, and was about 7 months old when his orphanage asked if we could help care for him.  He has no diagnosed medical or developmental issues, but they knew he would thrive under the care of our dedicated nannies.  

When G was three years old, he moved out of the nursery into our family model of care project.  

Since that time, he’s been in a foster family, learning and growing like any other little boy.  

He’s finishing up first grade in school and looking forward to his summer vacation.  

His teachers and foster parents say that he’s remarkably independent and has a mind of his own.  Of course, that doesn’t make it easy for him to follow “the rules”, but he’s very creative and has lots of ideas about how to do things!

Recently a generous donor made it possible for G and some other children from the orphanage to go out for a nice dinner and karaoke.  Everyone enjoyed the lovely meal, but when we offered to let the children start the karaoke they were all too shy.  Suddenly, little G said, “I’ll do it!” and he jumped up and headed for the stage… ready to sing!  His enthusiasm soon inspired the others, and before long all the children were clamoring to hold the microphone and belt out their favorite songs.

We are grateful to all who support out work.  You are helping us to make a difference for children like G.  

While we wish he had never been separated from his birth family, we are honored and privileged to stand in for them and be his family, providing him with nurturing caregivers, a stimulating environment, and abundant opportunities for growth and education.  We can't wait to see what the future holds in store for G!

Ready for School!

 Little YX was not quite two years old when he joined us.  

He had just undergone surgery to remove his right eye (due to an ophthalmic tumor).  His orphanage asked if we could provide the special care he needed during recovery and then ongoing care in one of our foster families.

After little YX had recovered from his surgery we helped him get fitted for an ocular prosthetic.  Since that time, he’s been a healthy, happy little boy with boundless energy and curiosity.  He’s in a preschool now, and will be starting first grade in the fall.

YX’s foster parents say he is a very smart little guy, who is sometimes “naughty”.  He knows that if he can’t get what he wants from mom, he can try asking his dad or one of his older siblings and he might just get it anyway. 😉  

Last month he traveled to Beijing to be fitted for a new ocular prosthesis, because his old one was too small.  We hope that it will help him fit in at school and he won’t feel like he stands out for being “different”.

We are grateful to all who support our work. You are helping us to make a difference for children like YX, providing him with nurturing caregivers, a stimulating environment, needed medical care, and abundant opportunities for growth and education.  

Launchpad 🚀 - Learning CPR

This past month our Launchpad participants were able to take a first aid/CPR class that was tailored just for them.  It was a wonderful learning experience; not only did they gain valuable, life saving skills, but it also taught them that people with disabilities can do many things they never dreamed they could do!

The class began with a reminder that in order to be effective in helping a person in need of aid, one must remain calm, and clearly assess the situation.  If you don't start with those steps your efforts may be not actually be beneficial.  Once everyone had grasped that concept, we moved on to the practical side of things.

We learned the indications for using the Heimlich maneuver first.  After that we practiced doing the Heimlich maneuver.  We recognized that while all of the participants could assist an infant, a person who is dependent on crutches or wheelchair cannot easily perform the maneuver on an adult. But it's still a skill worth learning -  you never know when you might use it!

Then we spent some time learning to perform CPR and the proper use of an AED.  Again, some techniques have to be modified for those with mobility issues, but it's easy enough to slip out of a wheelchair and down onto the floor.  Fortunately, CPR does not require the rescuer to be able to stand unaided.

After mastering the basics of CPR and the Heimlich maneuver, the teacher specifically emphasized the importance of prevention and situational awareness. A person performing a rescue must take care not to become a casualty themselves!

This class turned out to be much more meaningful and valuable than we had anticipated. Learning the skills that can save a life is a huge accomplishment (and also a big responsibility).  But even more than that we gained the recognition that disabled people are also very capable in responding to an emergency situation.  Both are invaluable lessons!

Mama's Little Helper

QX  has been in our care for the past 6 years.  She was born with Down syndrome and abandoned as a small infant.  When she was 4 years old, her orphanage asked if she might be able to join one of foster families.

QX has benefited greatly from being in a family.  

Like many children affected by Down syndrome, she is delayed in a number of areas.  But her foster parents have helped her to make so much progress – far more than if she had remained in an institutional setting.  

Although her speech is still somewhat unclear, she loves to talk and is a little chatterbox.  But what she loves more than anything is helping out.  Give her a table that needs wiping down, or a basin of dirty toys, or a floor that needs to be swept and it’s like she just won the lottery!  

Of course, this is not just a matter of chores getting done.   QX is gaining confidence, independence and valuable life skills while “helping” out at home.

QX demonstrates a great deal of care and compassion toward others.  We know this is because she has seen this modeled over and over – in her own foster family and her classroom.  Recently she was with her brother at a lesson on traditional Chinese medicine where the children were learning about treatment with moxibustion cups.  She noticed that the one of the cups started to slip, so she rushed over to help out and stabilize it.  The teachers were quite surprised by her attentiveness and sense of responsibility! 

We are grateful to all who support our work; you are making it possible for us to provide nurturing, family based care and educational and vocational opportunities to little ones like QX.  Thank you!