Friday, August 29, 2014

August 2014 Featured Child: Hua

This month’s featured child is Hua! Last year on November 26th, this beautiful boy came into our lives.

He was just over a month old when he arrived, and not doing very well. Hua was born with two complicated medical conditions - one being bladder exstrophy, and the other anal atresia. Bladder exstrophy is a relatively rare birth defect accruing at a rate between 1 in 10,000 and 1 in 50,000.

Little Hua has changed dramatically since he came to us 8 1/2 months ago. In his first pictures you can see he is a very observant and quiet looking boy who enjoyed swinging in the baby swings or being rocked to sleep.

He is definitely no shy little boy anymore, but a very smiley baby who loves to be held, kissed, played with and loved by all his nannies and the rest of Little Flower faculty.

He especially loves getting into things he shouldn’t, such as trashcans and big boxes of toys. But what 9-month old doesn’t? You would think that having a colostomy bag and a bladder exposed would slow someone down… But not Hua! He has everyone on their toes all the time trying to catch up with him.

Right now the plan is to do the bladder surgery first, and hold off on atresia while we give his body a chance to heal. Having two major surgeries like that at once is too much for a little guy like Hua. But because the first surgery to fix his bladder was unsuccessful, we are very concerned that the same thing could happen the second time, which could lead to even more complications. So please keep him in your prayers as we move forward with his treatment.

We have actually just confirmed that Hua is ready to have surgery whenever the funding is approved. But sadly right now we do not have the funding for his surgery which is very expensive. For both bladder exstrophy and second stage anal atresia it comes to $14,500 USD or roughly 90,000 RMB. You can click HERE to help Hua get closer to being healed and ready for a family of his own!

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