Tuesday, November 29, 2011
Little Ai Li
Baby Ai Li arrived a few weeks ago, tiny, frail and seriously ill. Shortly after she arrived her condition worsened, and she was admitted to the hospital. After more than a week of treatment she showed little improvement and it was decided to discharge her back to us for palliative care.
This little sweetheart has a serious heart defect. There are also concerns about a chromosome disorder. It is expensive and risky to operate now, so surgeons are recommending we wait - if her general condition improves then we will consider the surgery option again later. But we all all painfully aware that she may not survive to become strong enough for surgery.
Babies like Ai Li are never easy to care for. She is very fussy and irritable, finding it hard to get comfortable. When she's crying and fussing her heart rate and oxygen levels are very unstable, so the nannies work constantly to keep her calm. Her needs for special nursing care and close observation are intense. And of course, cuddling and loving a little baby who may not live very long is one of the most emotionally draining jobs out there.
Although the work is never easy, we are so grateful to our nannies who dedicate themselves to children like Ai Li. And we are also grateful to you, those who support us in what we do. Thank you!